Category: Uncategorized

Hey, feet. I haven’t thought about you in a while. Over the last couple of weeks, I started feeling some strange pain in my feet. I actually thought it was because of my new-ish shoes or maybe my socks were rubbing in a weird way. It almost felt like blisters, but I couldn’t see any…

Spidey sense activated I have a tingle that the cancer is coming back. In late December I had a strong “feeling” that the Cometriq was working, and then about two weeks later we learned that, yes indeed, it was working. Well, I hope I’m wrong this time because I have a “feeling” that the cancer…

Hi, how are you? I’m doing ok. I feel like crap, but I’m not dying. I had an appointment with my doctor people today. The cancer is still retreating. Which is good. But my day to day still sucks. I’m fatigued, dizzy, and nauseated almost all the time. And, unless I’m on a constant dose…

Honestly, I just haven’t been feeling like writing a lot lately. I still want to keep everyone updated, but I may be posting a little less until I’m feeling more inspired. Thank you all for reading and your love vibes. We met with my doctors yesterday and went over all of the next steps in…

The Cometriq is working. The cancer is receding. When I shared the news with friends and family, everyone was so excited and happy. I was happy, too. Or maybe, I wanted to be happy? Part of the reason my last post was so short is that I didn’t want to stand in the way of…

I have some astonishing news for you! The Cometriq is working! The results of the latest CT Scans are in, and things look promising! There has been a decrease in the size of some of the affected lymph nodes and my thyroid. Also, spots in the lungs are looking less suspicious. Overall, lots of positive…

**UPDATE – CT Scan was rescheduled for tomorrow (Jan 10th)** I wanted to give a quick update on how my appointment went yesterday. This was my first appointment since I started Cometriq. Unfortunately, it’s still too early to tell if it is working, so not much to report on that end. I thought that maybe…

I just got home from a week-long trip to Maine. I grew up in Maine and love so many things about it, and so many of the people that live there. Although, for some reason, Maine has never really felt like home. I’m very happy to be back in Austin, Texas. Which has felt like…

Not much to report, but I thought I’d give a quick update now that I am one week into taking the Cometriq. So far it’s not as bad as I thought it would be. I’m definitely feeling more tired, a lot achier and a little dizzier, but nothing extreme. I kept imagining myself taking the…

I finally got my results back from the RET mutation test. This test determines if my cancer has a common mutation that would qualify me to get into a clinical trial and access to the most-bestest meds. Once again, my cancer decides to follow its own path and go against the odds. I do not…